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Patient support groups allergy and asthma

post in: Lifestyle Date:09 Oct 2017, 13:55 views:3305

Patient support groups allergy and asthma

Home resources connect, allergy and allergy Asthma Network, aAN is dedicated to helping people affected by allergies and asthma through education, advocacy, community outreach and research. American Lung Association (ALA).

The American Lung Association is works to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research. For more than 100 years, the American Lung Association has been leading the fight for healthy lungs and healthy air. The American Lung Association was among the first to tackle smoking as the nation's greatest preventable health risk, and to make the connection between air pollution and lung disease.

American Partnership of Eosinophilic Disorders (apfed). Apfed is a non-profit organization dedicated to patients and their families coping with eosinophilic gastrointestinal disorders. Apfed strives to expand education, create awareness, and support research while promoting advocacy among its members.

Asthma and Allergy Foundation of America (aafa). Founded in 1953, the Asthma and Allergy Foundation of America (aafa) is the leading national patient organization for people with asthma and allergies, and the oldest asthma and allergy patient group in the world. Aafa is dedicated to improving the quality of life for people with asthma and allergies including food allergies and anaphylaxis and related diseases through education, advocacy, and research.

Food Allergy Research Education (fare). Food Allergy Research Education (fare) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in 13 children in the United States or roughly two in every classroom.

Fare is a 501(c 3) nonprofit organization that was formed in 2012 as the result of a merger between the Food Allergy Anaphylaxis Network and the Food Allergy Initiative. Immune Deficiency Foundation (IDF the Immune Deficiency Foundation (IDF founded in 1980, is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. On behalf of those with primary immunodeficiency diseases, IDF offers educational programs and materials that offer medical information, important life management and patient care resources, and support for patients and family members.

IDF supports advocacy to promote healthcare legislation and policies that positively affect the primary immune deficiency community; and research and medical programs that improve diagnosis and treatment of primary immunodeficiency diseases. The fpies Foundation, the fpies Foundation is a 501c3 non profit organization dedicated to overcoming the challenges of Food Protein-Induced Enterocolitis Syndrome (fpies) by offering tools for education, support, and advocacy to empower families and the medical community.

The Mastocytosis Society (TMS the Mastocytosis Society is a nonprofit organization dedicated to supporting patients affected by Mastocytosis/ Mast Cell Activation Disorders as well as their families, caregivers, and physicians/health care providers through research, education, and advocacy.

TMS offers educational materials, a quarterly newsletter, and a written resource guide for physicians/health care providers who need assistance in diagnosing a patient with a suspected mast cell disorder, an email list, and support groups.

 

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