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post in: News Date:06 Oct 2017, 15:38 views:2867
This directory includes national groups and organizations that can serve as resources for parents and professionals seeking information and support regarding specific allergy disabilities and conditions. Please note that information on some specific disabilities may also be available from Federal and Federally-Funded Information Resources, Parent to Parent Programs, or certain National Information and Advocacy asthma Resources (see Table of Contents for page numbers).
In addition, Matching Resources, at the end of this directory, may also be useful. Cross-referencing, categories have been cross-referenced where appropriate.
Many conditions are known by more than one name.
Readers are directed to "See" other relevant category names where resources are also listed. Under chromosome 4P-, for example, readers are referred to wolf-hirschhorn syndrome. Some specific disabilities are not covered by a specific national organization.
These conditions may be cross-referenced to a broader category that includes organizations that can provide helpful resources. For example, the metabolic condition arginase deficiency is cross-referenced to urea cycle disorders.
In some cases, the reader may be directed to a similar (but not identical) condition, when groups for that condition have indicated the ability and willingness to provide appropriate information and support. For example, 45,X syndrome is cross-referenced to turner'S syndrome and hypopigmentation.
In cases where resources are available for both a general category of disability (for example, visual impairment as well as specific conditions within that general category (for example, albinism; glaucoma; macular diseases; retinitis pigmentosa; retinoblastoma; septo-optic dysplasia; and usher syndrome cross-referencing goes in two directions. Under visual impairments, for example, readers are informed of the types of visual impairments for which specific resources exist; and under each specific type of visual impairment, readers are referred back to the more general category.
The only exception to this type of cross-referencing is the general category mental retardation, which is not used as a cross-referencing term. In cases where one specific condition usually includes other conditions, boise but those other conditions do not necessarily include the first condition, cross-referencing goes in one direction only.